• I AM ALS

    I AM ALS: Nonprofit created for and by people impacted by ALS. I AM ALS provides critical support and resources to people living with ALS, caregivers, and loved ones. They also empower advocates to raise awareness and lead the movement against ALS in driving the development of cures.

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  • ALS Association

    The ALS Association: The ALS Association is the only national ALS non-profit organization. They are a leader in research, care services, public education, and public policy.

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    Upstate New York Chapter

  • Hope Loves Company

    Hope Loves Company is a nationally recognized nonprofit that provides support, resources and community to children who have or had a loved one with ALS. We give children and young adult caregivers the tools they need to navigate grief, find joy, and remain hopeful.

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  • ALS Family of Faith

    The ALS Family of Faith was created to provide Christ-centered love and support to those facing this unimaginable life change. Whether you are a caregiver, a family member or you have personally received an ALS diagnosis, this service is free. You are connected with a trained care partner who will walk with you through the duration of your journey to listen, pray, and be a sounding board as frequently as needed.

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  • The ALS Hope Foundation

    The ALS Hope Foundation provides funding for the MDA/ALS Center of Hope, the first multidisciplinary ALS clinic in the country, and the Neuromuscular Research Laboratory at Drexel University College of Medicine. The Foundation also provides educational events to inform people living with ALS and the public about ALS.

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  • Brigance Brigade

    The mission of the Brigance Brigade Foundation is to improve the quality of life for PALS and their families by providing access to support services, needed equipment and resource guidance.

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  • Compassionate Care of ALS

    A non-profit organization with a mission to support people diagnosed with ALS, their families and communities as they navigate the complexities, both physical and emotional, associated with the disease. The organization provides resources including equipment, educational workshops, Medicare/Medicaid assistance, guidance and awareness in living with ALS, caregiving, and end-of-life issues.

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  • Elizabeth Dole Foundation

    The Elizabeth Dole Foundation was founded with the mission to strengthen and empower America’s military caregivers and their families by raising public awareness, driving research, championing policy, and leading collaborations that make a significant impact on their lives.

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  • HARK

    HARK is an active ALS charity organization that was founded by Donna Dourney York in memory of her father, Charles W. Dourney, who was affectionately known as “Hark” by his wife Ann.

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  • Help Hope Live

    The mission of Help Hope Live is to support community-based fundraising for people with unmet medical and related expenses due to cell and organ transplants or catastrophic injuries or illnesses. Help Hope Live supports many families affected by ALS..

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  • Kevin Turner Foundation

    The Kevin Turner Foundation (KTF) was created to bring attention to ALS and sports-related traumatic brain injuries.

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  • Les Turner ALS Foundation

    Since 1977, the Les Turner ALS Foundation has been Chicago's leader in patient services, research, and education for Amyotrophic Lateral Sclerosis.

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  • Live Like Lou

    The Live Like Lou Foundation’s mission is to create and connect communities to stimulate emerging ALS research and uniquely support families affected by Lou Gehrig’s disease. Programs supporting ALS families include one-time and short-term service in and around the home, Iron Horse Scholarships for dependents of people living with ALS, and home improvement grants.

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  • Muscular Dystrophy Association

    The Muscular Dystrophy Association is the world’s leading nonprofit health agency dedicated to finding treatments and cures for muscular dystrophy, amyotrophic lateral sclerosis (ALS).

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  • Synapticure

    Synapticure brings personalized care online and to your home. It was built by and for those living with ALS, alongside leading ALS clinicians, to transform care for all people living with ALS.

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  • Team Gleason

    Steve and his friends and family started Team Gleason to generate public awareness for ALS, raise funding to empower those with ALS to live a rewarding life, and ultimately find a cure.

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